7.15.2008

Defensive

My first summer class (the music class...remember the horror?) has ended, and my second one began yesterday. It's a class on special education called Introduction to the Exceptional Learner. I have both been looking forward to it and dreading it.



Today, the second day, we began watching the movie Educating Peter. Have any of you seen it? It's over fifteen years old, so a little dated, but what I've seen so far has been interesting. To say the least. We only watched the first 20 minutes today, and will continue it tomorrow. The professor intentionally didn't give us any background on Peter before we watched it, only that he has Down syndrome. The movie chronicles his inclusion in a third grade classroom. When he first arrives, he exhibits pretty drastic behavior problems. He yells unintelligibly in class. He rolls around on the floor. He wrestles chairs. He hits and pushes other children. He basically has no social skills whatsoever, and his speech is not understandable for the most part.



So we're all sitting there watching this, and I am immediately horrified. To see this kid with Down syndrome, trying to get along in a classroom, and failing miserably. To watch the reactions of my classmates, some in disbelief, others laughing when Peter does things like licking the camera, or cracking two boys' heads together. To realize that, even though I had ultimately decided NOT to say anything about having a child with special needs to the class, I was going to have to say something. Something, anything, to defend my own child and his right to an education in the least restrictive environment.



The professor stopped the video and asked us what we thought. She asked us how we would feel if we were the teacher. And how we would feel if we were Peter's mother. Or the mother of another child in the class. People started spouting off about how inclusion doesn't work, how it's too hard for the teacher, how it takes time away from the other students. How some kids with special needs need to be isolated in self-contained classrooms. How kids could be so mean to kids they can see are different. And I could feel my blood start to boil, though in a way I could see their point, because Peter was definitely a challenge. But these people are teachers, or are aspiring to be teachers, and they already have negative attitudes toward inclusion and diversity in the classroom. They are also parents; parents who would protest if their kid had to sit next to mine at school. I was hit with the realization that no one wants my child in their classroom, even though they have never met him or know anything about him. Not the teacher, not the students, and not their parents. I seriously started to shake with anger. And sadness.



Before I could even think straight, I heard myself start to explain how I didn't think that this was an accurate representation of a child with Down syndrome; how there seemed to be other factors at work here: how Peter had probably never been around typical peer models, so he had few social skills. How he may have never been corrected for his poor behavior. How he may have had an emotional disorder or something else that resulted in his inappropriate actions. And how I have a child with Down syndrome; a child that is bright and funny and engaged in his environment, and how, even though he is very young, we hope for him to be included, when the time is right, in a setting with his typical peers, so that he can benefit from modeling and social interaction.



So as I wrapped it all up, trying very hard not to get emotional (and probably failing miserably), the professor confirmed my suspicions; that Peter had never been in a regular education environment before; that he had spent years attending school at a facility for children with severe disabilities, who were mostly nonverbal. She was telling us how important it is that, as an educator, you take into account a student's history. Then class was over so she excused us, and I went to the car and cried.



I mean, am I fooling myself here? Am I going to have to keep my son isolated from typical kids? Am I going to have to fight tooth and nail for him to get the same treatment as everyone else? It's all well and good, now, because he's only two, and we generally only move in very supportive circles, I guess. I haven't come across such blatant discrimination yet. Am I fooling myself to believe that he will be able to function in a classroom? That he will know how to behave, and interact with others, and try to do his work? That he won't be rolling around on the floor during a math lesson? That he won't be screaming at the top of his lungs for no apparent reason? At age two, he does throw things around, and yell, and pull hair, but I've been chalking that up to toddlerness more than anything. Am I living in a bubble or what?

10 comments:

Elizabeth said...

Oh Jen. I am so so so sorry you had to sit through that.
But a few things.
I saw Educating Peter a long long long time ago, but from what I recall, it gets amazingly better, mainly because of how incredible the teacher is. I think Peter and his classmates have come a long way by the end.
Secondly, no, I don't think you are fooling yourself with your expectations. For one thing, high expectations are how we get places in life - I think you son will be well served by how much you expect him to be able to do.
My sister (who has DS) was included in the regular classroom from Kindergarten through through high school and at times there were struggles and fights, as there would be in anyone's childhood. But there was no rolling around on the floor, no cracking heads together. She had friends. She learned to read, to tell time. She graduated high school as a member of the National Honor Society. Granted, her work was often not the same as the other students. And we ALL had to work really hard. But overall it was a very positive experience, and made more so by our very high expectations, and our insistence that the quest for knowledge and the ability to learn for learnings sake was not pointless, regardless of IQ.
Sorry to blog in your comments, but I wanted you to know that there is much much hope. Keep your expectations high.

Maya said...

Jen,
OK your post made ME cry!
If you are fooling yourself, than I am fooling myself.
Seriously though, I don't think you are. I know that film (I watched it on cable shortly after Leo was born--BIG mistake). Peter had a lot of other issues going on along with DS. I wish they would make a movie about a more "typical" child with DS and show it frequently on cable the way they do the two Peter movies.
Anyway, hang in there. The other posters comment was helpful. And reassuring. I know there will definitely be challenges for us (as there are for all children/parents) but we have to hang in there and be hopeful and continue to set the bar high for our kids.
Just fyi since I know Evan is younger and you may be curious about the near future--Leo goes to a special preschool in the am and early afternoons but spends the rest of his day with typical peers at daycare. They report that he fits right in and does mostly the same thing the other kids do (except he doesn't talk as much, for now (!) He was definitely a challenging toddler (pulling things off shelves, throwing toys) but I am happy to report at age 4 there is no banging of heads together and he is mostly well-behaved.
Keep the faith is all I can say and all I can do.

Anne said...

Two things... One good, one bad.

The good one: Evan can have anything, do anything, be anything that you want him to have, do, be. You'll set the expectations, he'll follow course with his own, individual derivations and together you'll grow and move forward.

The bad one: Just an hour or so ago I went to pick Kit and Jack up at school. A lady I hadn't met before started talking to me, and she eventually asked if I had any more children. I told her that I did, and then she wanted to know if he went to Kit and Jack's school, too. I told her no, and then told her where Archie does go. At first she had no idea what I was talking about, but then I could see the shadow fall down over her face when she did recognize Archie's school. I told her that Archie has Ds, and explained that he receives excellent therapies at school, as well as typical classroom experiences with just a little more hands-on help available to him when he needs it. Well, she wanted to know if he was "mild," and she said it like that, "Is he mild?" And I gave her the same speech you shared with your class, and that should have been it. But then she said something like, "God bless him, and you, too," and I realized she didn't get it at all. The thing is that so many people who live in this world are so ignorant to differences that they just don't get it. They don't get it at all. And that's so, so, so frustrating. I know.

The wash between the good and bad: I do believe that we will always struggle with the school district along the way. I mean, if I looked at Archie on an off day I'd think he was awfully low-functioning, too. But when I look at him during an average day and keep in mind his history I know he's one incredible, smart and funny kid. And, yeah, I do think it'll be my job to remind educators about this all the time. Every day. Until I'm their worst nightmare. :-) But I believe, too, that if you and I fight the fight and we're in the right (i.e. Evan and Archie can manage and progress in the environments we select for him), then we'll ultimately get what we want school-wise.

Of course I've given this a lot of thought, and I have so much more to say about it all. I'll bend your ear someday if you'd like. Some of what I have to say may be hard to hear, I think, but I believe it all to be so.

Anyway...

Michelle said...

Oh my. That is so hard - how to make others understand. I think the higher your expectations, the better. I mean, why not expect him to go really far?

Momma M said...

The most important thing anyone has said to me on my short journey is that people will react to your child based upon how you portray them. Your son is a beautiful, bright, charming little boy. He's a functional, integral member of your family. He'll live up to those expectations. He'll benefit from you, your family, his siblings, his regular ed teachers, his specialists, his friends, etc. And you do and will show the world that he deserves to be a member of and participate in our larger society because that is what you EXPECT...that "they" will benefit from him just as much as he will benefit from them. Set the bar where YOU want it to be.
Unfortunately, as a currently retired teacher, I have to say that EVERY kid gets labeled, be it by the school system, their teacher(s) or their peers. Every parent and child has to fight that label and fight for their best interest. We haven't even begun the school system battle, but just with EI, it's a struggle.

Kim Ayres said...

Meg's in inclusive education. She has a support assistant to help her with her own education plan when it differs from her peers, but she is a well liked and accepted member of her class.

As you said, it's all about social skills in particular environments.

Meg (now 10 years old) is living proof it can work

Tricia said...

I was going to write that I honestly don't know if you are fooling yourself because I have been having a lot of the same doubts lately also (because of some various things going on in our personal lives/relationships), thank goodness for the comments left by others. I have hope for our kids, but I have to admit that I also wonder if I am living in denial.

This post has me rather weepy. (It's not a good day already.) I am so sorry you had to go through that, but I admire (and appreciate) that you spoke up. Sometimes it is just so hard.

Just so hard.

rickismom said...

NO NO NO!

You are not kidding yourself. Peter is NOWHERE near a typical child with DS. A child in inclusion needs SUPPORT! My daughter Rick, age almost 14, is just finishing seventh grade., in inclusion.
http://beneaththewings.blogspot.com/

Cate said...

I don't think you're fooling yourself. Or if you are, I am too.

I think it is going to be hard though. As much as I want it to be easy and, you know, sunshine/ rainbows/acceptance, I think it's always going to be a balancing act.

But that's true for all kids. The DS just compounds it.

Blah blah blah, I could go on about this forever...mostly I just want to say that I'm glad you spoke up. It's hard to do. High five!

datri said...

I would have been emotional, too!

Kayla is 4 and has been in preschool since she was 2 1/2. For the first year and a half she was in a completely nonverbal severe special needs class.

For the summer, I fought to put her in the integrated class. The preschool director did NOT want Kayla in the integrated class because she felt Kayla was not "high functioning" enough. Even though I was fighting for it, I was very nervous and hesitant about it.

But she's been in the class for two weeks now and WOW do I see a difference! She is babbling nonstop and has stopped stimming on her musical flashing toys all day. And she LOOKS at other kids now.

Always push for inclusion first. It may take some tweaking to get it right. And it's always easier to move to a less restrictive enviroment and try to prove that your kid should be moved out of one.